Go Grey in May

David - Go Grey in May Day 14

David - Go Grey in May Day 14

Each day in conjunction with Go Grey for May, I’m sharing incredible stories of our community of Brain Cancer Warriors. Buy a T shirt, Beanie or wear an old grey t shirt to support the movement around Brain Cancer. 


David Edwards
50 years young.
born 05/01/1966
Passed away 20/04/2016
Gbm frontal lobe tumor is what took him away from us.
He battled a hard fight from Oct
2012 when it was stage three non aggressive treatable frontal lobe brain tumor. Surgery to remove the tumor. Then infection was found in his skull and a further two surgery’s to remove and replace his skull he was on the mend so it would seem.
A fall found he had Stage four aggressive GBM. Which led to surgery to remove in 2015. Unfortunately he was never the same after that surgery and passed away nine months later.
There needs to be more done for this horrible Devastating cancer it takes so many people that are loved away from their family and friends. No symptom should be ignored. Talk
To your doctor. Push for tests. Dave’s started out with constant headaches. It was his amazing GP who pushed him for testing.

He left behind his beautiful wife. He was an amazing step father to my brother and I. He was a police officer and a loving husband and dad. He missed out on meeting his grandson and so many memories. (I got to see my baby on the scan for the first time a year to the day he passed away)

We miss you dearly dave edwards.
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Mathew - Go Grey in May Day 13

Mathew - Go Grey in May Day 13
Each day in conjunction with Go Grey for May, I’m sharing incredible stories of our community of Brain Cancer Warriors. Buy a T shirt, Beanie or wear an old grey t shirt to support the movement around Brain Cancer. 

Mathew
Currently 27 years old. Diagnosed at 23 years old.
He was diagnosed with Astrocytoma grade 3 BT. He had surgery, radiation and chemotherapy.
It was just myself and him and now we have twins!
Brain cancer is awful and I wish we could find a cure. It takes far too many good people from this world and leaves families heart broken. Go grey in may to raise awareness of this horrible disease 🤍
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Lee - Go Grey in May Day 12

Lee - Go Grey in May Day 12

 

Each day in conjunction with Go Grey for May, I’m sharing incredible stories of our community of Brain Cancer Warriors. Buy a T shirt, Beanie or wear an old grey t shirt to support the movement around Brain Cancer. 


Lee Jimison

Diagnosed 9/2019 at age 61. Passed away 3/2021 from Glioblastoma Multiforme wild type, right frontal lobe... Married for 33 years, 2 children, 1 grandchild. Lee was the love of my life! We shared 33 wonderful years together. We went on the trip of a lifetime in July 2019, and he was diagnosed Sept 3, 2019 after showing almost no symptoms. He endured 3 brain surgeries, one brain hemorrhage, Optune, radiation, chemo, as well as changes to diet and supplants. We through everything at the disease! He loved helping others and the hardest thing was when he could no longer build or fix things. He loved to MTB and was in great shape other than the GBM. He kept up hope til the end. I am finding more and more people around me with GBM and hope that they will some day find a cure!

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Elizabeth - Go Grey in May Day 11

Elizabeth - Go Grey in May Day 11
Each day in conjunction with Go Grey for May, I’m sharing incredible stories of our community of Brain Cancer Warriors. Buy a T shirt, Beanie or wear an old grey t shirt to support the movement around Brain Cancer. 

Elizabeth O'Connor
30/5/1951 - 25/9/2014
Aged 63
15 months fighting gbm4
Mother, grandmother.

I'm grateful for the time I had with mum. Mum was amazing and beautiful even after her last breath and we will always keep her memory alive.
Constant headaches- get a check up
Feeling very confused with day to day things- get a check up
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Steve - Go Grey in May Day 10

Steve - Go Grey in May Day 10

Each day in conjunction with Go Grey for May, I’m sharing incredible stories of our community of Brain Cancer Warriors. Buy a T shirt, Beanie or wear an old grey t shirt to support the movement around Brain Cancer. 

 

Steve Davis. 8 May 1959- 25 November 2020
Steve I were married 37 years, November 2019 he experienced an unusual seizure, where he felt frozen in his car for about 20min and when he could eventually move, he had a period of about 4 hours where he couldn’t remember my, or our kids names, or any of our friends. He recovered and didn’t tell me about it, the next day he had another episode whilst at work. I took him to hospital, and he was diagnosed with left temporal lobe GBM. He had surgery at Royal North Shore hospital a week later, he started radiation/ chemo early December 2019. In early January Steve had an episode where his heart rate dropped to 24, and he went to hospital via ambulance. He was in complete heart block and required a pacemaker. This was probably caused by brain swelling from the treatment. He did fairly well until around August 2020, where he started to show right sided weakness. By September we were aware of further deterioration and we were told that his tumours had returned and options were limited. Two weeks later we, as a family decided to stop treatment. Palliative care not long after. I was able to care for him practically by myself, with some help from my adult kids at home, where he died.
Steve and I have two wonderful children, Heather 35 and Andrew 33. Heathers partner, Rowan was also amazing in the help we received in Steve’s care.
Steve never wanted to talk about his illness or prognosis. He trusted us with his care. The tragedy of GBM is that you lose them long before they die. I have kept a fairly detailed journal of events from our battle. I’m not sure how to raise awareness of this monster, except to share our stories, and support brain cancer awareness events.
Thank you for allowing me to share with you and I hope that I can have some involvement in raising awareness.
Lyn. Continue reading

Cookie - Go Grey in May Day 9

Cookie - Go Grey in May Day 9


Each day in conjunction with Go Grey for May, I’m sharing incredible stories of our community of Brain Cancer Warriors. Buy a T shirt, Beanie or wear an old grey t shirt to support the movement around Brain Cancer. 

Well this ones going to be a hard one.

But honouring my man on my birthday. And my gosh I miss you more then ever. 

COOKIE (Peter) Cook born 25th March 1991 and passed 6th November 2020 after a short 3 month battle with stage 4 GBM, located in the Thalamus. I’ve shared Cookies battle many times in hopes that it raises awareness for people to go get checked. Who even at the age 29 thinks that something like this would kill you. 

Cookie faught a an unthinkable battle during the shittest time of Covid 19. Diagnosed in late July 2020 to receiving his first emergency surgery operation without being able to be by his side or hold his hand because mid pandemic - to losing him only 104 days later. 

You’ve left behind so many hopes dreams and a fuk load of love. Our kids are growing up, Reeds starting to talk and whenever I look at him he looks back with this smile and all I see is you. I am really struggling to write this, even 6 months on it hurts more then ever....... every little thing, you’re missing out on. 

I hope you’re having a bloody blast up there while I’m down here trying my hardest to help even get that little bit closer to a cure. Have a beer or ten I’ll cheers to you tonight. 

Forever loving you more. 

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Dennis - Go Grey in May Day 8

Dennis - Go Grey in May Day 8

Each day in conjunction with Go Grey for May, I’m sharing incredible stories of our community of Brain Cancer Warriors. Buy a T shirt, Beanie or wear an old grey t shirt to support the movement around Brain Cancer. 

My Dads name was Dennis Franklin.

He was born on the 18th of Feb 1958 and passed away on the 3rd of July 2007. He was diagnosed in late may 2005 (I’m pretty sure) after a few days of feeling off and having headaches. My mum woke up to him having a seizure in the middle of the night. He went to Geelong Hospital and had CT and/or MRI and then they sent him straight to the Alfred. He had surgery a day or two later where they did a biopsy, and was confirmed malignant immediately and had as much removed as possibly. He had radiation in Geelong, and Chemo in the form of a tablet. I was 13 at the time he was diagnosed, my little sister 9 and little brother 3. We live in Geelong and all my mums family in Victoria, but my dads family live in WA. So we moved in 2006 so he could spend the rest of his life with them, and so my Aunty and cousins could help look after him and us kids while mum still went to work.

 

He was on medical emergency at the Alfred which he loved, he had two eps that he was included in.

I wanted to say. I have followed you for a while now and I am in awe at your strength and bravery. I know how hard it can be, but I can’t imagine losing my partner and my kids father. It is a terrible realisation as it takes the naivety out of the way we live our lives. The worst case happened to us so now everything is immediately the worst case. I struggle with anxiety, and take medication too which I couldn’t function without. I don’t think it’s obvious to me even after 14 years, how much this impacted me. 

 

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Theresa Attard - Go Grey in May Day 7

Theresa Attard - Go Grey in May Day 7
Each day in conjunction with Go Grey for May, I’m sharing incredible stories of our community of Brain Cancer Warriors. Buy a T shirt, Beanie or wear an old grey t shirt to support the movement around Brain Cancer. 
Name: Theresa Attard
Age: 78 when she passed away in 2016.
My Nanna was diagnosed with a stage four GBM (glioblastoma). She lost feeling in her right arm and when taken to the Physio, he suggested an MRI which showed the tumor. She was taken straight into hospital and from there we found out it was inoperable and radiation treatment may help to prolong her life but ultimately there was no cure. Doctors gave us a timeframe of three months if the radiation didn’t help to potentially a year if the treatment went well.
From diagnosis to death she lived a month.
I never knew much about Brain Cancer until we lived through this nightmare but the facts I know now are frightening and nothing is changing!
Brain Cancer has a five year survival rate and only 2 in 10 people actually make it to that time. It receives less than 5% federal funding yet this cancer kills more children than any other disease. There is currently no screening for brain cancer in Australia. This disease takes your loved ones quickly and in such a cruel way. Let’s raise awareness during May so that others don’t experience the pain that so many of us already have.
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Kai - Go Grey in May Day 6

Kai - Go Grey in May Day 6

 

Each day in conjunction with Go Grey for May, I’m sharing incredible stories of our community of Brain Cancer Warriors. Buy a T shirt, Beanie or wear an old grey t shirt to support the movement around Brain Cancer. 

Name: Kai Michael Raecke

DOB 12/22/56,

DOD:4/22/2020

 

Kai was a well known motorcycle photojournalist and editor for Easyriders Magazine. He was married to a preschool teacher and between the two of them they had a blended family of 5 daughters. Kai was an adventurous spirt who loved to travel the world and an avid reader. His left temporal lobe tumor impaired his speech, but not his spirit. Up until a week prior to his passing, he wrote a book despite the limited function he had with his right hand. If he had one message to pass on to anyone, it would be to follow your dreams and live life to the fullest our days are counted here on earth, love with all your heart and have no regrets. In bringing awareness to this disease, he would say be a champion for your own health, there may be little signs that you may overlook which could be early symptoms of the disease. Until there is a cure, seeking early treatment may help extend the time you spend with your loved ones. More funding needs to go towards prevention and successful treatment of this disease. If the government can send a rover to the planet Mars, they can invest the same amount of money in finding a successful treatment for all cancers.

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Warren - Go Grey in May Day 5

Warren - Go Grey in May Day 5

Each day in conjunction with Go Grey for May, I’m sharing incredible stories of our community of Brain Cancer Warriors. Buy a T shirt, Beanie or wear an old grey t shirt to support the movement around Brain Cancer. 

 

Name: Warren Ramm
Age: 49 DOD: 29/4/2010
Location of tumour: brain
Time frame battling: 5 months
Married with 3 kids
I miss you everyday ❤️

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